Maybe I will reveal one of the most major gliches in my personality by writing this, but if you know me at all you already know my biggest fault, and I hope you still like me despite of it...
I'm an information junky, and knowledge freak, and I like to know it all. And if I'm wrong, I want to be SURE I'm wrong. So with that in mind, here is my devasting Friday story, and maybe more.
Two weeks ago I had a bad cold. Chills, body aches, nausea, and a bad headache. And a sore throat. By day 4 I thought, "Gee, if this aweful sore throat would just go away, I'd feel better..." Then it dawned on me that maybe I have strep throat, and so I looked in the mirror with a flashlight, and sure enough there were white patches on my tonsils. (I thought strep was the only thing that showed up like that.) Later I would read that my symptoms matched strep perfectly (headache, nausea, bodyaches and chills....)
I had been contemplating bringing Rugger in to the doctor anyway since he had discharge coming out of his eyes, and I was worried that he had a sinus infection. So now my decision was made; we'd go in.
The doctor looked at my throat and Rugger's ears, and wrote us both up for Amoxicillin (no throat swab.) We took them, and added Pumpkin later since she got pink eye and was stuck up in the sinuses, and we all dutifully finished them.
Fast forward to Sunday when I was done with the antibiotics. Two days later I woke up with a headache and a slight sore throat. "Not again..." I thought. I looked in the mirror, and on my tonsils were the same patches, but only red. We had a NORMAL doctor's appointment the next day, on Wednesday, and I'd ask the doctor about it then. Maybe the spots stay there long after you have strep?
So I ask him in the course of things, and he says, "Yeah, your throat looks real bad, but I think you're fine. You finished the antibiotics, don't worry about it."
So I didn't. Until Thursday night when my throat REALLY hurt and the patches were now WHITE again. And to top it off, Rugger threw up once in the middle of the night. (He had thrown up on Sunday evening, we thought it was a bug.)
Well, here's where my stupidity comes in, apparently. I knew from researching the strep the first time around, that in kids that are preschool age, the symptoms are quite different from adults. Often times they don't get the sore throat. Vomiting is a sign in little ones. And they might have what's called a Strawberry Tongue. From pictures, I thought Pumpkin had this the first time around, and now both kids looked like they had a faded version again. (Not bright red, but definately different than what their tongue looked like two days ago. Trust me. No one else will....)
So I call the office and request the earliest appointment since today (Saturday) we'll have a birthday party, and if we are on antibiotics, I want to make sure we put as much time in before people come to the house. So I get a 9:45 appointment, which I'm late for due to a last minute diaper change and my ability to always be late everywhere. At least I called and said we were running late.
So we get there, he examines us (the same doctor as on Wednesday, but different from the one that diagnosed the strep the first time.) I ask all my strep-related questions during the exam so I don't take up his time later. He says he's pretty sure it's just viral, but we'll wait for the swabs to come back (which I requested since I didn't want to be treating something that wasn't there, and he stated the same thing. I purposely liked this doctor because he won't prescribe antibiotics when not needed, though he confused me by saying is only ONE of us is positive, he'll treat the whole family, and he suggested Pumpkin get her vaccines NOW vs. any other time in the 4-6 year period....but anyway.)
So he says if it's positive, he'll be back to talk to us. If not, have a good day. (why we can't talk to him if it's negative, I don't understand....) So we wait, and sure enough it comes back NEGATIVE for all three of us.
I will be truthful. I was floored. I had added up all the symptoms, people at chruch who we run close circles with were also diagnosed with strep after I was, they all agreed this stuff cycles sometimes. The internet was full of recurring strep stories. I just hadn't expected to be relieved of the burden of antibiotics, which I was so dreading.
So I asked the nurse what we do, and if a throat culture would show anything different. (also keeping in mind that I've read that 5-10% of those tests are false negative.) He exact words were, "Well, he said that since the antibiotics are still in your system, it's going to be negative. Basically you're not contagious. You can go home."
To me, this sounded like "Even if you DO have the strep bacteria, the antibiotics will mask the results, but you can't pass it around, so don't worry." Which means to me that if we still have it, there would still need to be SOMETHING done to get rid of it. So I asked her if I could talk to the doctor again when he's done with his other patient.
So he comes in and says, "What do you want to hear?" I start to say something when he cuts me off and curtly says, "It's a virus. You don't have anything. Go home." I start to say, "But I just...." He cuts in with, "If you want another opinion, go to a different doctor." I say, "No, I DON'T want another opinion, I trust you, I just want to know..." "Listen, I'm getting frustrated, we're running out of time." "Well if you give me a chance I'll ask my question. The way the nurse stated it, made it sound like the anitbiotics are potentially masking..." "No. We would have seen it." "And the symptoms?" "They're nothing. I didn't want to be rude before, but they don't even have strawberry tongues, it's nothing." "And the white patches?" "Tons of stuff. Any virus." He opens the door. I ask "So what do you think it could be?" "Anything."
And he's gone. And I'm about two inches tall and hiding in the corner. I want to cry. I don't want to walk out of there with my happy kids who have no clue how humiliated I feel. I apologive to the receptionist so that when I show my face there again at least she knows I wasn't TRYING to be THAT KIND of patient.
I don't know what set him off. Maybe when I walked in and said, "I was right!" in a joking voice, because I HAD gotten sicker. Maybe it was me talking about strep the whole time instead of waiting for the positive result. I don't know.
But I think that even if I ticked him off (unintentionaly. I had NO clue where he came from being so angry) that he still reacted unprofessionaly. I mean, who's paying who, here? Why is it that I can't ask questions about a virus, that though I know it can't be treated doesn't mean I don't have questions.
Why is it that I can't make sure, ABSOLUTELY sure, that we don't have strep? Part of me was angry that there was never a first swab before I took the round of antibiotics, and I'll never now know if I had had it at all.
But mostly, I was embarassed, shocked, angry. So I was wrong. Don't I still have a right to make SURE I'm wrong? Aren't I still a person who lost sleep with worry, with a sore throat, with a child who threw up once out of nowhere? Don't I deserved at least a caring tone explaining WHY I am wrong vs. a "It's nothing I can help, go home" attitude?
When did doctors stop caring and stop trying to HELP? Why did he think I was attacking HIM? If I wanted meds, I'd have asked for them despite the outcome. I don't do that. I was caught off guard, so I wanted to make sure what I was hearing, that's all.
In fact, I was wrong earlier this week. I took Boomer to the vet for what I was sure was an ear infection (due to his stratching of the ears and shaking his head) and it was nothing. But the vet prescribed antibiotics anyway, and I paid for the unnecessary visit and unneeded meds. I took them home, put them on the counter, and thought, "For next time."
I don't want meds. I want answers. If you don't have answers, I understand. But at least be decent enough to explain it to me.
I'm afraid to talk to my friends, the ones I called frantically Friday morning to warn them we had strep again. I'm wondering what they'll think when they hear I'm an idiot who had no idea what I was talking about.
I hope they understand. I hope we're close enough of friends that they won't think less of me. I feel like I can't even tell eveyone for the shame that crawls to my face when I replay the scene in my mind. I felt SO BELITTLED.
And so, I hope that is all for this month. I don't like feeling stupid. I'm anal. I know that. I serve my kids cereal in certain colored bowls, with certain spoons. And if I have dirtied one and it's not available, it bothers me. I go on, but that's who I am. I like straight lines and facts. I like geometry and proofs. And when I'm wrong, I like to be sure.
And in nothing else, my faith in the medical community that was barely there before has now been completely shattered. I dream of the day when we as people can be informed about our bodies and the doctors respect us for it, and they admit their own limitations and treat us like friends or family. When the same scenario ended with this instead of the way it did:
"You know, you're right that a lot of these symptoms appear with strep. I wish they had taken a swab the first time because maybe you didn't have it then, either, we'll never know. But see how their tongues are? It would be darker and more swollen if it were Strawberry Tongue. And the patches on your throat are more common than people realize. It's called "tonsilitus" and it happens whenever they are inflamed and the sores show up. The rapid test is pretty accurate, but if you want, we'll get a culture, and that will also confirm that you have nothing else bacterial in nature. Otherwise, I think you probably have a couple different viruses going around, and if you think you have strep again, feel free to come in, but for now I'd say just drink plenty of fluids and rest. Hope your birthday party goes well!"
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